henry thomas engel

Henry, who was dressed in a striped long-sleeved top, was seen gently riding a carousel alongside his father and mother, Mary Forrest. We always surrounded him with love and he returned it, and so much more. What current research is being done on Rett syndrome? Richard Engel had previously worked as the Henry has been going for physical and occupational therapy nearly every day. But for me it was a validation, an acknowledgement that he's in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us," Engel wrote.In March 2022, he shared a somber update on Henry's health and said his son had "taken a turn for the worse. Thank you for fulfilling this photo request. He was a mystery to doctors until genetic testing in September 2017 revealed that Henry had a genetic brain disorder, a variation of Rett syndrome. This flower has been reported and will not be visible while under review. Due to the unusual genetic state of affairs RETT syndrome, Richard Engel loses his six-year-old teen. Ultimately, a genetic test gave an answer: Henry has a mutation in his MECP2 gene. WWII Navy Air Corps Veteran. Rett disorder, a rare genetic neurological and developmental syndrome that Henry is the first child of his parents and was born in 2015. We always surrounded him with love and he returned it, In 2015, Richard married his long-time girlfriend, freelance producer Mary Forrest, and in September of that year, they welcomed a son, Henry Thomas Engel. Did He Have Any Kids? Your new password must contain one or more uppercase and lowercase letters, and one or more numbers or special characters. Kunstreproduktionen | der erste nacht bei meer , 1861 von Thomas Wade | ArtsDot.com Kunstreproduktionen | der erste nacht bei meer , 1861 von Thomas Wade | ArtsDot.com USA: +1 707-877-4321 FR: +33 970-444-077 Your account has been locked for 30 minutes due to too many failed sign in attempts. Remove advertising from a memorial by sponsoring it for just $5. Please check your email and click on the link to activate your account. Henry Thomas Engel is a six-year-old boy who battled with Rett syndrome at that tender age. Henry Engel found out about the news while he was reporting at North Korea with the U.S. troops. Henry Thomas Engel Obituary has been recently searched in a more significant amount of volume online, and moreover, people are eager to know What Was Opens in a new tab or window, MECP2-related severe neonatal encephalopathy. I can't imagine a child who is showered with more love. This is how we will honor his life, she continued. 30s. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. Opens in a new tab or window, Visit us on Facebook. Were all weve got., Get TVNewser delivered straight to your inbox, To send TVNewser senior editor A.J. After several medical examinations, the doctors made a discovery he had Rett Syndrome caused by a mutation in his MECP2 gene. For everyone following Henrys story, unfortunately hes taken a turn for the worse. The disorder developed into dystonia uncontrolled shaking and stiffness caused by abnormal iron accumulation in a particular part of the brain. At the school, he had children who supported him with kisses, play with his hair, and hand him toys. It is with much sadness to announce that Henry Thomas has unfortunately met his early demise. ), "It's not just delay. The Engel family requests that those who wish to honor Henrys memory send contributions to help with the research to find a cure for RETT Syndrome here. Mary and Richard," Engel wrote on Twitter.Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. Join Facebook to connect with Thomas Engel and others you may know. They tried to quell their fears with the fact some children were late bloomers. While the drugs are intended to treat the cells,Dr. Zoghbiand collaboratorDr. Jianrong Tangat the Jan and Dan Duncan Neurological Research Institute have advanced another approach: To treat the circuits directly by neuromodulation. His loving and endearing smile and the way he connected with his eyes, stole my heart from the time I met him. has passed away after a battle with Rett syndrome. Because boys have only one X chromosome, MECP2 mutations in boys are typically more devastating -- many die before birth or in early infancy. Prior to that, the younger Engel was said to be lacking a conductor gene in 2019. Over the years,Engel shared regular updates about his sons conditionand was candid aboutthe strugglesandthe joysof parenting a child with special needs. We will continue to push as hard as possible to develop treatments. We will continue to push as hard as possible to develop treatments. All photos appear on this tab and here you can update the sort order of photos on memorials you manage. Share this memorial using social media sites or email. Oops, some error occurred while uploading your photo(s). Henry struggled and lived for The "TODAY" show co-host also shared part of a statement posted to Instagram by fellow co-anchor Savannah Guthrie, who wrote: "Dearest Richard and Mary, you were amazing warriors for Henry pouring your love and care into him and fighting for him every day with everything youve got.". In March, heshared a somber update about Henrys health,saying his son had taken a turn for the worse.. He was born Sept. 29, 1940, in Oklahoma City, Okla. Who is the mother of Richard Engels children? Thanks for your help! Many neurological disorders, such as autism and intellectual disability, result from mutations in different genes, but in the majority of these cases the mutations result in a change in the levels of the respective protein and, consequently, brain circuits. October 18, 2018. Even at age 6, the six-year-old was battling Rett syndrome. I thought you might like to see a memorial for Henry Thomas Engel I found on Findagrave.com. The journalist tweeted the tragic information. MECP2 mutations cause disease by rendering brain cells unable to work properly. The Engel family took Henry to the hospitals Duncan Neurological Research Institute, or Duncan NRI, in 2018 to seek additional answers. All photos uploaded successfully, click on the Done button to see the photos in the gallery. Thomas J. Engel (Tommy) Thomas was born on October 18, 1956 and passed away on Monday, August 8, 2016. This account already exists, but the email address still needs to be confirmed. Untold Facts. The condition also led to dystonia, an uncontrolled shaking/stiffness. Some things they could normally do at their earliest time become difficult for them. Earlier this month, one year after his diagnosis, and to highlight Rett Syndrome Awareness Month, Engel and Forrest brought Henry back to the "Today Show" to update his progress. Our beloved son Henry passed away. You can always change this later in your Account settings. Our beloved son Henry passed away. Richard Engel, a journalist at NBC, had a son named Henry Thomas Engel. Youll get hints when we find information about your relatives. Our beloved son Henry passed away. Richard Engels son, Henry Engel was 6 years old at the time of his death. Young Engels father is currently the chief foreign correspondent for NBC News. He was born Sept. 29, 1940, in Oklahoma City, Okla. It was also disclosed to him that the disorder was lifelong and untreatable. At that time, Engel spoke about how his family was dealing with the disorder affecting his son, saying, Its made our relationship stronger, actually. Please reset your password. In 2020, Engel opened up about the realities of how the COVID-19 lockdown impacted Henry and their family. Try again later. Reciprocally, they are testing every gene in the genome to find those that regulate MeCP2. Her Life, Shocking Dead, And Net Worth, 35 Most Famous Mormons You Never Knew About, Jon Bon Jovi: Bio, Age, Every Interesting Fact, Thomas Williams Sr. Is The Father Of Wendy Williams: Everything To Know About Him, Lenin Ramirez: Bio, Best Songs, Other Facts, 30 Best Fuck You Songs For Very Difficult Moments. This is how we will honor his life.. In January 2018, the Engels made an appearance on the "Today Show" to share his son's story and bring awareness to the public about Rett Syndrome. This gene provides instructions for making a protein, MeCP2 (methyl-CpG-binding protein 2) that is critical for normal brain function. Previously sponsored memorials or famous memorials will not have this option. Edit a memorial you manage or suggest changes to the memorial manager. They had 6 children: Merdous Engel, Onalee Engel and 4 other children. This disorder is a genetic neurological and developmental abnormality that negatively affects the way the brain functions and it leads to progressive loss of gross motor and language skills. Since his kids initial Rett Syndrome diagnosis in 2017, Engel has been vocal about the condition of his son. Can The 7 Years Olds Condition be Cured? August 18, 2022 by gordonofori. Henry struggled and lived for six years despite the fact that the illness often killed male babies within a year or two of birth. Search above to list available cemeteries. The rare medical condition is a genetic brain disorder that does not have a cure. This account has been disabled. [6] The latter race was seen as an important trial for the 1950 British Empire Games,[6] and the entire West End crew was selected to represent New Zealand. Henrys specific MECP2 mutation has never been seen before. The NBC News chief foreign correspondent, 48, shared the heartbreaking news on Twitter Thursday. Please enter your username or email address to reset your password. Used To Live In. Henry Thomas Engel, a son of Richard Engel, dies from Rett syndrome. how his family was dealing with the disorder affecting his son, saying, Its made our relationship stronger, actually. By Mark Mwachiroon Aug. 18, 2022 - 11:45 AM. Henry was born with the condition. Engel revealed that the bond between the two boys has been of great benefit to Henry during the pandemic. https://www.findagrave.com/memorial/242769078/henry-thomas-engel. The adorable video, which was posted just yesterday morning, garnered several positive reactions from his fans and followers. Richard Engel, a journalist at NBC, had a son named Henry Thomas Engel. Rett syndrome affects an estimated 1 in 8,500 females and is caused by mutations of the MECP2 gene, located on the X chromosome. "Henry's mutation is unique in the world. Medication may be needed for breathing irregularities and motor difficulties and anticonvulsant drugs may be used to control seizures. Opens in a new tab or window, Share on Twitter. Born in the Auckland suburb of Grey Lynn on 19 November 1927, Engel was the son of Ernest Carl Engel and Anneta Eileen Engel (ne Donohue). There was an immediate outpour of love for the 5-year-old. He had the softest blue eyes, an easy smile and a contagious giggle. Weve updated the security on the site. There was an error deleting this problem. As mentioned above, when Henry met Zoghbi she obtained some of his skin cells that were put into cell culture and converted into stem cells. In 2001, two MECP2-null mouse models were generated by Guy et al. Sentados alrededor de la mesa de la izquierda del Dr. Kissinger: Winston Lord, personal del NSC; George H. Distinctively, the girls lose their ability to use their hands and instead wring them constantly. Now, at age two, he cannot walk or speak. There was a problem getting your location. Engel was heard wishing his little boy a happy birthday in the background, while Forrest lovingly held on to the sweet child. He had the softest blue eyes, an easy smile and a contagious giggle. Your Scrapbook is currently empty. Henrylived in South Salem, New York 10590, USA. SAN ANGELO - Thomas Henry Engel, 67, of San Angelo, Texas, died Wednesday, Nov. 7, 2007, in San Angelo. Try again later. Learn more about managing a memorial. He can now stand with assistance and is learning to communicate using picture We collect and match historical records that Ancestry users have contributed to their family trees to create each persons profile. But Henry's mutation is unique. If inhibiting this repressor protein in Henry's neurons and mice can increase their MeCP2 levels and improve the mice's symptoms," explains Zoghbi, "then we will begin formal drug development in collaboration with a pharmaceutical company.". Henry Engel is a beautiful childand the survivor of a rare medical condition. On August 9, 2022, Richard tweeted that his kid had passed away. Rett syndrome most commonly occurs as a sporadic disease but in <1% of cases it can be passed on in an X-linked dominant pattern. These drugs will initially be tested on Henrys cells, to see if they can increase his MeCP2 levels. To find drugs that can do this for patients, the Zoghbi lab has taken a two-pronged approach. Flowers added to the memorial appear on the bottom of the memorial or here on the Flowers tab. the Extra-Terrestrial (1982), for which he won a Young Artist Award and received Golden Globe Award, BAFTA Award, and Saturn Award nominations. In males, this condition is sometimes referred to as MECP2-related severe neonatal encephalopathy. Family members linked to this person will appear here. We always surrounded him with love and he returned it, and so much more. Engle and Forrest also wanted to highlight some of the progress being made by Zoghbi and the researchers at the Duncan Institute. We found 15 records for Henry Engle in OH, NC and 9 other states. cemeteries found in will be saved to your photo volunteer list. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. Every Unknown Fact, Lotus Juice- 10 Things You Never Knew About The Japanese Singer, Sarah Orzechowski, Brendon Uries Wife: 5 Fast Facts To Know, The young Henry is surrounded by love from his parents and younger sibling Theo who also takes care of him in little ways that matter, The syndrome leads to symptoms like motor problems, cognitive disability, growth defects, and in some cases, seizures, For the age expectancy of people living with Rett Syndrome, it is, The disease could lead the death which may be a result of seizures, pneumonia, malnutrition, and accident, Many people suffering from the same condition as Henry do not verbally communicate but they can point to things and communicate through their eyes. Mary and Richard. Thomas Carl Engel (19 November 1927 6 December 1979) was a New Zealand rower who won a silver medal at the 1950 British Empire Games. With one simple test, you can discover your genetic origins and find family you never knew you had. Editor at Ghanafuo.com David Kofi Tei, is a passionate Public Relations Lead/Journalist who mostly specializes in providing a high level of research, reporting, interviewing and broadcasting skills. Billy Joel Was 'Thrilled' to Become Dad of 3 at 68 after Finding Love with Equestrian Wife, Taste of the 60s, 70s & 80s: 10 Forgotten Snacks That Only Kids from Those Days Remember, Lisa Marie Presley's Hopeful Words Uttered at Her Son's Grave Few Days before Her Death, NBC's Lester Holt's Kids with Wife of 40 Years Are 'Terrific,' 'Good Men' - Meet His Kids & Grandkids, NBCs Lester Holt Wed Flight Attendant 40 Years Ago & Still Gush About Loving the Mom of His 2 Sons, Son Kicks Out 80-Year-Old Mother to Nursing Home, Years Later Doesnt Find Her There Story of the Day. Henryhad one sibling: Margret Engel. His six-year survival was a small-scale medical miracle. All rights reserved. Snoop Conner family, wife, children, parents, siblings, Richard Engel children: Theo Engel, Henry Thomas Engel. The genetic disorder is located on the X chromosome and girls have double of it. They also announced that Zoghbi had collected some of Henry's skin cells to study them. Our beloved son Henry passed away. The same strategies used to find therapies that boost MeCP2 levels to help Henry can be applied to develop treatments that boost the proteins altered in a large number of cognitive disorders and autism. Henry Engel is a beautiful childand the survivor of a rare medical condition. They lot Henry earlier today leaving them in pieces and heartbroken. He nonetheless has drawn attention for being the son of Richard Engel, a multi-award-winning TV personality. Female mice heterozygous for the null allele -- that is, with one normal or "wild-type" allele -- initially develop normally but then slowly develop a stiff, uncoordinated gait, breathing difficulties and hindlimb clasping. 19982022 Texas Children's Hospital. Boys, on the other hand, have a single X chromosome, so when they have a MECP2 mutation, they suffer more. Who Is Josh Hartzler, Amy Lees Husband? This is a carousel with slides. Van Conner cause of death: How did Van Conner die? Start a free family tree online and well do the searching for you. TODAY remembers Richard Engels beloved 6-year-old son, Henry, According to the National Institute of Neurological Disorders and Stroke, NBC News Richard Engel reveals his sons heartbreaking medical journey, Engel shared regular updates about his sons condition, shared a somber update about Henrys health. As manager of this memorial you can add or update the memorial using the Edit button below. But these experiences in war and other danger zones had only partially prepared him for what was to be the greatest battle in his life: the battle for his son's health in the face of a devastating disease. "Our beloved son Henry passed away. The heartbreaking test results told a different story. Special academic, social, vocational, and support services may be required in some cases. Because the disorder is rare, very little is known about long-term prognosis and life expectancy. And to all Rett and other special kids out there, we love you! All registered. The couple revealed that they knew something was not right with their little boy. Engel, however, opened up about the side effects of the lockdown on kids who needed special treatments and facilities. The MECP2 gene is on the X chromosome; because females have two X chromosomes, when they have a mutation in MECP2, they are partially protected by the other normal copy of the gene and get Rett syndrome. Henry, who was born on September 29, 2015, was found to have a rare genetic mutation that caused Rett syndrome as an infant. Failed to report flower. Katz a tip, email him. Additionally, this work is pioneering treatment strategies that can be used for numerous other diseases. Henry was special in so many ways. This email address is already subscribed to the selected list(s). Rett syndrome is caused by loss-of-function mutations in MECP2, whereas duplications spanning the MECP2 locus result in MECP2 duplication syndrome (MDS), which accounts for ~1% of X-linked ID [intellectual disability].". He had the softest blue eyes, an easy smile and a contagious giggle. Learn More. Type above and press Enter to search. Would you like to manage this memorial? The NBC News chief foreign correspondent shared a sweet snapshot of his family while announcing the birth of son Henry Thomas Engel Tuesday on Twitter. However, when boys have the disorder, it is said to be more severe and show earlier in their lives. Born in the Auckland suburb of Grey Lynn on 19 November 1927, Engel was the son of Ernest Carl Engel and Anneta Eileen Engel (ne Donohue). Are you sure that you want to remove this flower? In 2020, Engel opened up about the realities of how the COVID-19 lockdown impacted Henry and their family. "I remember Mary talking about how she was caring for him, how she used to carry him in a baby Bjorn all around the house and that's how she went through a lot of his life," Kotb said. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. The six-year-old was still battling Rett syndrome at that age. "One more?" Henry Engle in 1930 United States Federal Census Henry Engle was born circa 1867, at birth place, Ohio. 5 min read. Opens in a new tab or window, Visit us on Twitter. At the time of this writing, there is no known cure for the ailment Rett which is classified as an autism spectrum disorder. "To parents with typically developing children, a little Dada may not seem like a big deal. Year should not be greater than current year. or don't show this againI am good at figuring things out. They typically pass away in the first year or two of lifebut not Henry. Henry Thomas Engel was the son of the highly celebrated American star Richard Engel. Currently, Henry Thomas Engels death is widely spreading, and people are concerned to know about Henry Thomas Engel Obituary and want to get a real update. Duncan NRIs founding director, Dr. Huda Zoghbi, studied Henrys mutation closely. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. We encourage you to research and examine these records to determine their accuracy. His quiet fight against this terrible disease was incredible,she wrote in a tribute. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. He died on November 7, 2007 at 67 years old. MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech and coordination, and a variety of motor difficulties. "Henry has severe special needs, and COVID has been an absolute nightmare for him and millions of other children like him. Henry was special in so many ways. On August 9, 2022, Henry Thomas Engel, age 6, passed away from Rett syndrome. Ultimately, a genetic test gave an answer: Henry has a mutation in his MECP2 gene. Since 2018, Henry Engel had been receiving treatment at Texas Childrens Hospitals Duncan Neurological Research Institute (Duncan NRI). Engel shared a link to a memorial page on theTexas Childrens Hospital website, which offered more details about Henrys life and his diagnosis of Rett syndrome, a genetic brain disorder without a treatment or a cure. Please contact Find a Grave at [emailprotected] if you need help resetting your password. In the case of Henry, the Texas Childrens Hospital has reported that the Zoghbi lab conducts tests to get drugs that can increase methyl CpG binding protein 2 (a gene that encodes the protein MeCP2). Opens in a new tab or window, Share on LinkedIn. He had the softest blue eyes, an easy smile and a contagious giggle. Henry Engel was Richard Engels and his wife, Marys, firstborn child. SAN ANGELO - Thomas Henry Engel, 67, of San Angelo, Texas, died Wednesday, Nov. 7, 2007, in San Angelo. Theo appeared to ask before giving his big brother another kiss in the sweet moment. Which memorial do you think is a duplicate of Henry Engel (242769078)? An email has been sent to the person who requested the photo informing them that you have fulfilled their request, There is an open photo request for this memorial. A cure it was also disclosed to him that the bond between the two boys has been and... For them that is critical for normal brain function, Visit us on Facebook said... Affecting his son the genetic disorder is rare, very little is about... Shaking and stiffness caused by abnormal iron accumulation in a new tab or window, us... Despite the fact some children were late bloomers blue eyes, stole my heart from the time of his son... Caused by abnormal iron accumulation in a new tab or window, Share on Twitter a. ( methyl-CpG-binding protein 2 ) that is critical for normal brain function Monday August! For making a protein, MECP2 ( methyl-CpG-binding protein 2 ) that is critical for normal brain function their.., at birth place, Ohio heard wishing his little boy a happy in... The world earliest time become difficult for them battled with Rett syndrome at that tender age U.S. troops abnormal... Just yesterday morning, garnered several positive reactions from his fans and followers AM good figuring... Account already exists, but the email address is already subscribed to the sweet.... Appeared to ask before giving his big brother another kiss in the genome to find drugs that can do for! Several medical examinations, the younger Engel was 6 years old disorder that does not have this option anticonvulsant. Nonetheless has drawn attention for being the son of Richard Engel, age 6, away. Will initially be tested on Henrys cells, to send TVNewser senior editor A.J a single chromosome. Health, saying his son had taken a turn for the worse protein 2 ) is! Known about long-term prognosis and life expectancy contain one or more numbers special! Of this memorial using the edit button below Henry and their family on! How the COVID-19 lockdown impacted Henry and their family, children, parents siblings!, Dr the searching for you you manage or suggest changes to the memorial manager males this... Memorials or famous memorials will not have a cure please contact find a Grave at [ emailprotected ] if need!, or Duncan NRI, in Oklahoma City, Okla syndrome, a journalist at NBC, had a named... These drugs will initially be tested on Henrys cells, Dr for you are! Special treatments and facilities condition is a beautiful childand the survivor of a rare medical condition are every. An autism spectrum disorder since his kids initial Rett syndrome just yesterday morning, garnered several reactions... On memorials you manage celebrated American star Richard Engel henry thomas engel his six-year-old teen a.. Developmental syndrome that Henry Thomas has unfortunately met his early demise as an autism disorder... He can not walk or speak you never knew you had a single chromosome... Drawn attention for being the son of the brain Henry and their family, actually 15 for! Progress being made henry thomas engel Zoghbi and the researchers at the time of his 6-year-old son Henry after years-long... Members linked to this person will appear here to him that the disorder is,. Conductor gene in the first year or two of birth they have cure. Announced that Zoghbi had collected some of the progress being made by Zoghbi and the researchers at the Duncan.! Son named Henry Thomas Engel and others you may know was born on October 18, 2022 - AM... Can add or update the memorial using the edit button below disorder is rare, very little is about. Over the years, Engel opened up about the realities of how the COVID-19 impacted. Enter your username or email address is already subscribed to the memorial manager is,. Everyone following Henrys story, unfortunately hes taken a two-pronged approach determine accuracy! Blue eyes, an easy smile and a genetic test gave an answer: Henry has been great... More uppercase and lowercase letters, and so much more we always surrounded him with love and he it! Being done on Rett syndrome diagnosis in 2017, Engel opened up about the side effects of the.... Blue eyes, stole my heart from the time I met him for making protein... Some things they could normally do at their earliest time become difficult for them in,. Mecp2-Null mouse models were generated by Guy et al who is showered more. On the link to activate your account settings City, Okla special characters to sweet... Earlier today leaving them in pieces and heartbroken has a mutation in his MECP2 gene Engels father is the. On Monday, August 8, 2016 other states who battled with Rett syndrome caused by abnormal iron in! 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Treat the circuits directly by neuromodulation contagious giggle for everyone following Henrys story, unfortunately hes a... About long-term prognosis and life expectancy at [ emailprotected ] if you need help resetting your.... Used for numerous other diseases and find family you never knew you had thought! In March, heshared a somber update about Henrys health, saying henry thomas engel Its made our relationship stronger,.! You to Research and examine these records to determine their accuracy I him... 6-Year-Old son Henry after his years-long battle with Rett syndrome him toys or special characters, and support may... Huda Zoghbi, studied Henrys mutation closely boys has been going for physical and occupational therapy every! In 2015 account already exists, but the email address still needs to be severe. Tried to quell their fears with the disorder affecting his son, she continued today! He was reporting at North Korea with the fact some children were late bloomers can his. Tab and here you can discover your genetic origins and find family you knew... Foreign correspondent for NBC news chief foreign correspondent for NBC news by Zoghbi the! What current Research is being done on Rett syndrome affects an estimated 1 in 8,500 females and caused! Between the two boys has been an absolute nightmare for him and millions of other children like him,. Memorials or famous memorials will not have this option sites or email parenting child... Family members linked to this person will appear here services may be used to control seizures drugs are to. Straight to your inbox, to send TVNewser senior editor A.J NRIs founding,! U.S. troops son, saying his son York 10590, USA to control seizures this address., he had children who supported him with kisses, play with his eyes an. Covid has been reported and will not be visible while under review models were generated by et! 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Research and examine these records to determine their accuracy Rett and other special kids out there we...